Tuesday, January 27, 2009

Day 22- Visiting Javahni

Logan had a blast in the playroom there.

Natasha & Javahni

He just said "Auntie!"

The poster hanging in his room.

My daughter Natasha's bf Ashleigh, who is like a daughter to me, has a little boy named Javahni. He was a normal healthy 2.5 year old until one morning in November when he didn't respond when Ashleigh checked on him when he didn't wake up. His breathing was very labored and they called 911. He has been in the hospital since then and can no longer walk, or sit up. His test results are just finally starting to come in and they think he has a form of mitochondrial disease. http://www.umdf.org/site/c.dnJEKLNqFoG/b.3042169/k.7A8C/About_Mitochondrial_Disease.htm

We went to visit him today and it was so nice to see him smiling & laughing. He is starting to regain his speech. When this first happened he just stared out into space and didn't respond to anything. We are hoping for a miracle so he can once again be the active, happy little man that he was.

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